Welcome from the Chair
Discovering there was a way forward with HOPE and KNOWLEDGE when our daughter was diagnosed with an eating disorder changed everything for me. I was able to replace fear and despair with newfound strength and direction to support her to recover. This hope and knowledge came from FEAST www.feast-ed.org (Families Empowered and Supporting Treatment).
FEAST is a wonderful worldwide community of carers, providing a wealth of up-to-date research and treatment information, along with online support from those treading the same path. At last I found the unshakeable belief that my daughter could recover, and I knew what I needed to do. I was able to make a plan, with strategies to achieve my non negotiable goal – her return to the full and wonderful life she so deserved.
KNOWLEDGE TRULY IS POWER
Now I’m excited to tell you that FEAST are bringing a day of learning to our part of the world! On June 14 in Sydney you are invited to FEAST of Knowledge – a one-day conference for parents, partners and family members to learn and share from leading experts. This is the third Feast of Knowledge which has followed the annual Academy for Eating Disorders International Conference (ICED) since 2018. This year ICED is in Sydney 11-13 June (see later in this newsletter for more details), and once again FEAST are holding FEAST of Knowledge, taking advantage of the gathering of specialist health professionals, researchers and those with lived experience to create a fabulous lineup of speakers, including Janet Treasure, Laura Hill, Stephanie Knatz Peck, Lucene Wisniewski, Laura Collins and many others.
Save the date for FEAST of Knowledge – 14 June!
The programme will be available, venue confirmed and tickets for sale any day now, but in the meantime please save the date and make plans to be in Sydney for at least the one-day FEAST of Knowledge. You may also like to consider attending all or just the Saturday of the ICED conference https://www.aedweb.org/aed-events/iced-2020 .
NB: If you haven’t already, I urge you to check out the FEAST website, learn as much as you can and take the time to connect with others for vital support on one of their forums:
EDANZ is run by a small group of volunteer caregivers who have experience caring for a loved one with an eating disorder. We use the experience we have to help other parents and caregivers who find themselves in a position of having to look after a loved one with an eating disorder. We are looking for more volunteers to help us provide this invaluable service.
In recognition that not everyone will be keen (or suitable) for frontline support on the phones or running group sessions, and that you may have varying time availability, we've described below the range of ways you could join to help us...
The services we provide are:
0800 HELPLINE SERVICE – This operates seven days a week. We have a roster system which enables volunteers to choose how often they are on call. Our role on the 0800 helpline is to offer support, compassion, understanding, resources and education. Our own lived experience of eating disorders provides our callers with the opportunity to talk with someone who understands. We offer training and supervision, with a trial period before confirming new team members to this important role.
SUPPORT GROUP MEETINGS – We hold support group meetings around the country which provide an opportunity for caregivers to come together to listen, talk and share their experiences. These meetings are facilitated by at least one and sometimes two EDANZ volunteers. The support group meetings usually run for about two hours. Currently we hold meetings monthly in Auckland and periodically in regional areas.
ADVOCACY AND EDUCATION – EDANZ volunteers are involved in many aspects of educating the wider community about eating disorders. We visit schools, universities, medical centres and DHBs to provide further understanding of eating disorders and recovery. We also collate, print and distribute much needed-reading material, articles and resources – including this newsletter.
FUNDRAISING – EDANZ receives no government funding and relies totally on donations and grants. We currently have one volunteer with specific skills in this area focusing on grant applications. We also lobby Government, liaise with eating disorder service providers in both the private and public sectors, and travel to conferences to make sure we are up to date with the latest research and treatments.
Would you like to be part of our dedicated and passionate team of volunteers?
If you are interested in helping others who are caring for someone with an eating disorder, please call 0800 2 EDANZ / (09) 5222 679 to have a chat, or email us at firstname.lastname@example.org. We would love to hear from you!
EDANZ believes parents/carers have unique abilities to support one another and we hold regular meetings to which you are warmly invited.
NOTE: Please let anyone you know in the Rotorua/Lakes area that we're coming their way this week and would love to see them!
Wednesday, 19 February, 7.30pm - 9.30pm
Thursday, 20 February, 10am - 12pm
Community Meeting Room
Rotorua Library Te Aka Mauri
1127 Haupapa Street, Rotorua
advising which session you wish to attend and the number of attendees.
(Please note these sessions should NOT be attended by those suffering from an eating disorder.)
Monday, 24 February, 10am-12pm
Zumo Coffee House
42 Rutherford Street
RSVP to email@example.com
Wednesday, 26 February, 5.30pm
Wednesday, 25 March, 5.30pm
to Bella on 021 115 7919 for venue address details.
Saturday, 29 February, 10am-12pm
Johnsonville Community Centre
3 Frankmoore Avenue, Johnsonville
RSVP to firstname.lastname@example.org
Tuesday, 3 March, 7.30pm-9pm in Greenlane
RSVP for address details to email@example.com
Details of EDANZ parent/carer support group meetings and others around NZ can be found on our website:
As Nicki mentioned at the start of this newsletter, we are fortunate to have two international conferences happening in nearby Australia in the first half of the year. Both will provide valuable opportunities for caregivers to learn about the latest research and treatments of eating disorders.
International Conference on Eating Disorders (ICED), Sydney, 11-13 June
EDANZ is an exhibitor at this year's ICED Conference which will be held in Sydney, Australia on June 11-13, bringing together over 1,000 clinicians, researchers and students. Co-hosted by the Academy for Eating Disorders (AED) and Australia & New Zealand Academy for Eating Disorders (ANZAED), the conference will take place in the gorgeous, ultra-modern International Convention Centre Sydney, situated in Darling Harbour.
ICED 2020 Early Bird Registration is officially open!Pay now. Pick your sessions later!
FEAST of Knowledge, Sydney, 14 June
We urge you to consider attending FEAST of Knowledge, theone-day conference for carers to be held in Sydney on Sunday, 14 June. Save the date , more details to come shortly!
The latest nine truths about weight and eating disorders
A New Zealand parent’s story on caring for a teen with anorexia
A parent’s story – still standing
Animated videos for parents
Comparing FBT and CBT
FBT is for all ages
What about the siblings?
When a family member suffers from an eatingdisorder, the entire family is impacted by the illness. Just as the child with the eating disorder will require support, so too will any siblings during what can be a very stressful and tumultuous time. The link below contains some resources to provide a better understanding of the sibling experience and guidance for this very difficult time.
We are a volunteer organisation who rely totally on donations and grants to provide our services – many of which are currently self-funded.
Your donation is much needed to enable us to continue our work providing support to families, education to healthcare providers and the community, and advocating for improved access to evidence-based treatment for all affected New Zealanders.
© Copyright 2020 EDANZ