May 2022 Newsletter

In this issue...

  • Message from the Chair
  • The disruptive companion – Podcast
  • Eating disorders and autism: more common than you think – Podcast
  • The connection between ARFID and autism
  • With a Little Help From My Family: Who is FBT For? 
  • Invitation to Change Approach – two-day online workshop
  • Annual General Meeting
  • Upcoming support meetings

 

Message from the Chair


Firstly, I would like to wish everyone Happy Mother’s Day on 8 May and hope that you have the chance to celebrate the day with your mother, children and family. It is a special day that gives us a chance to reflect on how important family is, and how grateful we are for the contribution that mothers make to our lives.

We often receive feedback about the high quality of the support we offer to parents and caregivers who are looking after someone who is suffering from an eating disorder. We also receive positive feedback about our advocacy work which has a high profile and is helping making positive changes to policy and funding. This contributes to a misconception that we are a funded organisation with paid staff whilst, in reality, EDANZ is completely run by volunteers and relies entirely on donor funding. 

We are proud of what we do, but we cannot continue to provide this vital service without the continued contribution from our volunteers or without the generosity of donations. If you are able, please consider making a donation to support our work, and to continue to support the growing number who suffer from an eating disorder.

We will be hosting our annual general meeting on 31 May, and all are welcome to attend this virtual event. Since the last AGM we have made a number of changes to how we operate, including separating our governance from our operations, and formalising many of our processes. We hope to continue to build on these changes over the coming years and will be presenting the EDANZ strategic plan for approval at the AGM. I look forward to seeing you there.

Tim Boyle
Chair, EDANZ

 


 

The disruptive companion podcast

SBS news – The disruptive companion – Podcast 

https://www.sbs.com.au/news/podcast/the-disruptive-companion

Living with or caring for someone with a mental illness has its challenges – and when your loved one is dealing with an eating disorder those challenges can seem insurmountable.

Direct link to podcast

 


 

Eating disorders and autism

Eating disorders and autism: more common than you think – Podcast

From Butterfly Australia

The relationship between autism and eating disorders is not well known but the two quite often go hand in hand. In fact, the connection is so common that many clinicians recommend that people diagnosed with an eating disorder should probably be screened for autism too.

Link to podcast






Power of Family in Eating Disorder Treatment

The connection between ARFID and autism

By Lucy Wetherall
From FEAST

The most important thing to know about ARFID and autism is that support and research on this connection is growing.

https://www.feast-ed.org/the-connection-between-arfid-and-autism/

 


 

Who is FBT for?

With a Little Help From My Family: Who is FBT For?

By Laura Mulheim

Family based therapy can be for people of any age, including adults. 

https://www.eatingdisordertherapyla.com/fbt_for_adults/

 


 

Invitation to Change Approach workshop

Invitation to Change Approach – two-day online workshop

This is an online two-day workshop for parents of a loved one with substance use disorder. This learning will be really helpful for families with the dual challenges of ED and substance use. 

 


EDANZ AGM

Annual General Meeting

Tuesday, 31 May at 6.00pm, via Zoom

Everyone is welcome to attend. While the AGM will be held virtually, please RSVP to attend. A Zoom link, agenda and papers will be sent to you when you RSVP. As well as discussing the make-up of our Board, we will be seeking confirmation of our strategic plan. We welcome your input and involvement.

RSVP to EDANZ AGM

 


 

EDANZ Support Group Meetings

Upcoming support group meetings

EDANZ believes parents/carers have unique abilities to support one another and we hold regular meetings to which you are warmly invited. Currently, we're joining together around the country once a month thanks to Zoom videoconferencing technology. 

If you would like to participate in a virtual support group, please RSVP to info@ed.org.nz and we'll send you the link.

We alternate monthly between evening and daytime meetings.

Upcoming 2022 Dates:

  • May: Monday 16th, 7pm-8.30pm
  • June: Friday 17th, 12pm-1pm
  • July: Monday 18th, 7pm-8.30pm

More information can be found on our website Parent/Carer Support Groups page

Remember: EDANZ helpline is open throughout all Covid 'traffic lights' – please don’t hesitate to contact us info@ed.org.nz or leave a message on the phone 0800 2 EDANZ and we will get back to you as soon as we can. If you are concerned about the safety of someone, please ring 111 or go to the Emergency Department of your nearest hospital.

 


 

Did you know, we receive no regular funding?

Many families have told us they consider our support to be essential and life-saving. However, we are a volunteer organisation and rely totally on donations and grants to provide our services – many of which are currently self-funded. 

Demand for our services has reached unprecedented levels, but sadly donations are down as the pandemic has hit Kiwis hard over the past two years.

If you can, please consider donating to EDANZ

Your donation will enable us to continue our work providing support to families, education to healthcare providers and the community, and advocating for improved access to evidence-based treatment for all affected New Zealanders. 

Make a Donation