February 2023 Newsletter

This month we introduce our new interim Chairperson, long-term volunteer Wiebke Gailer. Wiebke has taken over the role from Tim Boyle, who recently moved offshore, and she will lead EDANZ until a new Chair is elected at the Annual General Meeting in May. EDANZ would like to thank Tim for his contribution to EDANZ's governance since September 2021 and wish him every success in his busy new position.

In this issue...

  • From the Chair
  • Feast of Knowledge one-day conference – 27 February
  • Training event for clinicians – Auckland, 14 March
  • The rapid descent of a happy, care-free boy and how he escaped anorexia's grip
  • An opportunity to take part in research
  • EXTRA EXTRA! Read all about what "Extra" can mean in eating disorder recovery
  • Upcoming support meetings



There are two upcoming events with international experts – one for parents and caregivers and one for clinicians. We encourage you to take up these opportunities to learn about the latest developments in eating disorder treatment. 

This month we also include a range of articles that we hope you’ll find useful as you support your loved ones who are suffering from eating disorders. Remember, recovery is not unattainable or rare – and there is always hope. 

Finally, we wanted to let you know that long-standing EDANZ Board member Nicki Wilson is leaving the organisation next month. We would like to take this opportunity to thank Nicki for her tireless efforts over the last eleven and a half years in not only supporting parents and caregivers who are caring for those with eating disorders, but also for her advocacy championing for improvements in the healthcare system and for recognising and promoting the vital role that parents and caregivers play in recovery. Nicki has also been heavily involved in eating disorders internationally through her work with FEAST. She has been a true inspiration to all the volunteers in the team. Her energy, compassion, leadership, vast knowledge, and strong commitment to our cause have been the driving force in enabling EDANZ to be so effective and such a valuable resource for carers of affected individuals. Thank you, Nicki, for your encouragement, guidance and friendship. We all wish you the very best for the future. 

Wiebke



FEAST OF KNOWLEDGE
One-Day Conference for Parents and Caregivers

FEAST of Knowledge

FEAST of Knowledge is a virtual conference taking place on Monday February 27 from 4am – 10am NZ time. Registration will allow you to watch the webinar in your own time so no need to get up early!  This is a full day of cutting-edge presentations and interactive discussion opportunities with leading experts in eating disorders.

Presentation topics include navigating transitions, preventing relapse, finding good treatment, addressing suicidality and self-harm, the neurobiology of eating disorders, avoiding collusion with the eating disorder, tolerating distress, physical activity during recovery, and more!

The keynote speaker is Dr Christine Peat, Director of the US-based National Center of Excellence for Eating Disorders (NCEED). Dr Peat will be discussing ways to collaboratively improve the state of eating disorders treatment. You can view the complete programme on the registration page.

The cost to attend is US$60 for an individual and US$100 for a family (limit of 3 caregivers).

Register here         Find out more




TRAINING EVENT FOR CLINICIANS
Introduction to TBT-S 

EDANZ is delighted to announce that international expert Dr Laura Hill, PhD, FAED is offering a one-day introduction to TBT-S in Auckland at the Greenlane Clinical Centre on Tuesday, 14 March 2023. This event is for clinicians. For more information and to register, visit the event page.

Read More / Register




The rapid descent of a happy, care-free boy and how he escaped anorexia's grip

The rapid descent of a happy, care-free boy and how he escaped anorexia's grip

From Stuff

Harry Averill was just 13 when he developed anorexia. Now 23, Averill has written a book, ‘Hungry to be Happy – How I lost and found my mind’.

Read article




An opportunity to take part in research

 

An opportunity to take part in research - Deaking University

Researchers at Deakin University are inviting New Zealand families to take part in an online study to understand how and why personality traits, characteristics, and behaviours associated with autism spectrum disorder and anorexia nervosa are related.

They are interested in the presence of these traits and behaviours among parents of children who have been formally diagnosed with autism or anorexia, as well as parents whose children do not have either condition. Parents can take part if their child is 13 years or older. Click the below link to find out more. 

Go to research survey




Extra Extra! Read all about what "Extra" can mean in eating disorder recovery

What Extra can mean in eating disorder recovery

From FEAST

When you're caring for someone with an eating disorder, trying to find the right words can feel like navigating a minefield.

Read more






EDANZ Support Group Meetings

Upcoming support group meetings

EDANZ believes parents/carers have unique abilities to support one another and we hold regular meetings to which you are warmly invited. Currently, we're joining together around the country once a month thanks to Zoom videoconferencing technology. 

If you would like to participate in a virtual support group, please RSVP to info@ed.org.nz and we'll send you the link.

We alternate monthly between evening and daytime meetings.

Upcoming 2023 meetings:

    February 17, 12-1pm
    March 13, 7-8pm

    April 14, 12-1pm

More information can be found on our website Parent/Carer Support Groups page

Remember: EDANZ helpline is open throughout the year – please don’t hesitate to contact us info@ed.org.nz or leave a message on the phone 0800 2 EDANZ and we will get back to you as soon as we can. If you are concerned about the safety of someone, please ring 111 or go to the Emergency Department of your nearest hospital.




Did you know, we receive no regular funding?

Many families have told us they consider our support to be essential and life-saving. However, we are a volunteer organisation and rely totally on donations and grants to provide our services – many of which are currently self-funded. 

Demand for our services has reached unprecedented levels, but sadly donations are down as the pandemic has hit Kiwis hard over the past two years.

If you can, please consider donating to EDANZ

Your donation will enable us to continue our work providing support to families, education to healthcare providers and the community, and advocating for improved access to evidence-based treatment for all affected New Zealanders. 

Make a Donation