For carer support, call us today: 0800 2 EDANZ or (09) 5222 679

May 2023 Newsletter

In this issue...

  • Message from the Chair
  • Eating disorders in transgender people
  • There's a huge fatphobia problem in the eating disorder world
  • "I never thought I had an eating disorder"
  • The impact of eating disorders
  • Pre-order Bite Back book
  • Upcoming support meetings

This month we have a range of articles that we hope will help you in your journey supporting your loved one. There’s an article about weight stigma and another about eating disorders in transgender people – both topics that we don’t regularly have information about. An inspiring short video interview with a young woman provides insight into what it’s like to have an eating disorder and her story of recovery. We have also included a story about the impact that caring for someone with an eating disorder has on families and caregivers. The article emphasises the importance of looking after your own well-being.

We’re excited to share the link to Voices of Hope founder Genevieve Mora’s new book Bite Back which has practical tips to help with recovery, answers to frequently asked questions, and advice for supporting a loved one with an eating disorder.

On 24 May 2023, EDANZ is holding our annual general meeting. Everyone is welcome to attend the AGM (via Zoom). Find out more and RSVP here

Sending you good wishes and hope

Eating disorders in transgender people

Eating disorders in transgender people

By Laura Muhlheim

From Very Well Mind

Transgender people represent an understudied and under-recognized group that experiences eating disorders at higher rates. The most comprehensive study to date found that transgender college students reported experiencing disordered eating at approximately four times the rate of their cisgender classmates.

Read the article

There’s a huge fatphobia problem in the eating disorder world

Fatphobia in the eating disorders world

By Theresa Gaffney

From Stat

People with larger bodies who struggle with eating disorders frequently face bias from the people who are supposed to help them, according to experts. “If you are born into a Saint Bernard body and you starve yourself, you’re not a whippet, you’re a starved Saint Bernard”.

Read the article

“I never thought I had an eating disorder”
Hope Virgo’s journey to recovery from anorexia

Hope Virgo's journey to recovery from anorexia

From Young Minds

A seven-minute British video featuring Hope Virgo. She provides an honest insight of what it is like to have an eating disorder and to recover.

Watch video

The impact of eating disorders

The impact of eating disorders

By Amber Schultz

From the Sydney Morning Herald

new study from Flinders University has found parents – mostly mothers – had to take an average of 70 days off work to care for their child throughout the duration of the illness, with 75 per cent of parents spending more than 21 hours a week on direct care.

Read the article

Pre-order a new book – Bite Back

Pre-order Bite Back

Bite Back is a new book by Genevieve Mora, co-founder of Voices of Hope. It is a compassionate guide to navigating eating disorders, for those experiencing them and their loved ones, from someone who has been there. As well as sharing the insights from Gen's own lived experience and challenging stereotypes around eating disorders, Bite Back includes:

  • Practical tips and activities from Gen and her team that helped with recovery
  • Answers to frequently asked questions about the cause and treatment of eating disorders
  • Advice on how you can support a loved one going through it.

Find out more and pre-order the book

EDANZ Support Group Meetings

Upcoming support group meetings

EDANZ believes parents/carers have unique abilities to support one another and we hold regular meetings to which you are warmly invited. Currently, we're joining together around the country once a month thanks to Zoom videoconferencing technology. 

If you would like to participate in a virtual support group, please RSVP to and we'll send you the link.

We alternate monthly between evening and daytime meetings.

Upcoming 2023 meetings:

    May 15, 7-8pm
    June 16, 12-1pm

    July 17, 7-8pm

More information can be found on our website Parent/Carer Support Groups page

Remember: EDANZ helpline is open throughout the year – please don’t hesitate to contact us or leave a message on the phone 0800 2 EDANZ and we will get back to you as soon as we can. If you are concerned about the safety of someone, please ring 111 or go to the Emergency Department of your nearest hospital.

Did you know, we receive no regular funding?

Many families have told us they consider our support to be essential and life-saving. However, we are a volunteer organisation and rely totally on donations and grants to provide our services – many of which are currently self-funded. 

Demand for our services has reached unprecedented levels, but sadly donations are down as the pandemic has hit Kiwis hard over the past two years.

If you can, please consider donating to EDANZ

Your donation will enable us to continue our work providing support to families, education to healthcare providers and the community, and advocating for improved access to evidence-based treatment for all affected New Zealanders. 

Make a Donation